Friday, June 10, 2011

Yesterday was my 4th visit to the fibromyalgia clinic. I am just going to write in list format what was discussed.

-Since the Questran detox works well for me I can use that whenever I need to in addition to my daily medication.

-The surviving mold results which showed I failed bodes more labs needed. I have to call on Monday and see if my county health insurance will cover blood tests through Lab Corp. These blood tests will give the doctor a better understanding of how yeast, mold, and fungus affect my body. Basically mold affects the neurotoxins in my body so after getting the results he will know whether this is a large contributor to deal with or not a big deal at all.

-I am currently at 10,000 for Vitamin D and since my lab results are still a bit low, I am to increase by a 1,000 every week to eventually reach 15,000. The purpose of increased Vitamin D is more energy, weight loss, and immune strength. The Vitamin D is helping to kill off whatever is in my intestines and stomach as far as yeast.

-I have another virus called Epstein-Barr Virus which produces Infectious Mononucleosis. It is another virus that I must have caught at some time in my life that went dormant. Right now it is reactivated, but not a cause for alarm. It would be flashing a yellow warning light at this point vs. a red light. Antibodies raise with reactivation which is another way to say that it compromises my already weak immune system.

*"An antibody is a protein produced by the body's immune system when it detects harmful substances, called antigens. Examples of antigens include microorganisms (such as bacteria, fungi, parasites, and viruses) and chemicals.

Antibodies are also produced when the immune system mistakenly considers healthy tissue a harmful substance.""

-Everyone has Natural Killer Cells- which is our main line of defense once sickness or bacteria, etc. get into our system. In normal adults they function with about 70-90%, fibromyalgia patients usually function between 10-20%. I am at 12%.

-The HHV-6 virus is reactivated in my body right now which means my immune system is not doing it's "jobs." Apparently test wise 1/100 is when it starts to become an issue. I am at 1/160 which meas it's really not good at all. There is no cure for this (except the healing mercy of God!) but I asked if there is a possibility the virus could go dormant again if my immune system strengthens with time. It's a possibility!

-I was reminded again that sugar is to be avoided completely. Which means even all fruits must be avoided at least for the next 4 months as it is high in fructose. Fructose grows yeast and yeast is a major contributor to fibromyalgia, and can add up to 15lbs. on a person's body! I have been struggling with sugar this last month and was told explicitly "You've got to learn that sugar is your enemy." So no more almond milk or "bites" of whatever. This is serious business and as I take a million pills to kill the yeast I cannot keep feeding it. One bit of sugar makes the craving so sharp as the yeast takes over.

-Just as when we wake up in the morning and have that film of bacteria coating our teeth before we brush our teeth, yeast and bacteria create a biofilm that does not allow antibodies to work and filter out the things it needs to get rid of. I have a new supplement called Interfase which I will take 1 pill 2x a day, working up to 3 pills 2x a day.

-I was prescribed a medication for my liver to keep stuff moving out right now that is not clearing out. I am to take it 2x a day with meals.

-I forgot to buy this yesterday because I was astonished at the total of the supplements I needed plus the 2 new ones which totaled at about $133, but I need to start a new probiotic (vs. the Acidophilus I currently use) to help realign my gut as all the yeast and everything is being killed.

-We spoke more about using Saccromyces (OTC supplement I've been using) and Nystatin (prescription medication) which are more medications to re-balance my GI tract. I learned not to take them together but rather a couple of hours apart. Oops!

-Since I am doing so well on the thyroid meds the doctor said I can increase from 4 pills to 7 a day! Every 5 days I will increase by 1 pill until I reach 7 pills. 4 AM ones and 3 PM ones. This is what is making me lose weight and it is giving me energy. As I take more I may have more energy!

-I was also put on another supplement to help my immune system fight off infections. Apparently breast milk is full of an antibody that helps a baby fight off antibodies until they produce their own. This supplement is made from coconut oil and has that same antibody found in breast milk. They come in pellet (which makes me think of bunnies!)form and so I start with 5-10 pellets 1x a day, then in a few days 2x a day, and eventually 3x a day.

All in all the doctor said I am responding well to treatment and that he is really encouraged by my progress as a lot of his patients take months to respond. My blood pressure is down which is great since I was skyrocketing there for a long while and headed down my genetic road to high blood pressure. He wants to see me again in 6 weeks to go over blood test results regarding the mold (depending on results there is a specific protocol and treatment plan). This may be right before "the big change" fast approaching. ;)

I am trying to get as much information and as much done here as possible. Even though I spoke to someone from the clinic in NC I want to make sure I am covering my bases completely here while it is accessible to me. I am sure there will be a lapse in medical coverage as it will take time to apply and whatnot, so all medications and blood tests are best obtained now.

I canceled the pap exam scheduled a few days ago. I will reschedule it next week. I just didn't want to deal with 3 appointments in one week.

Speaking of- I saw the eye doctor for the eye infection follow-up. He was able to confirm this time that the infection was viral (he saw the bumps on the cornea) so he is having me wean off of the steroid drops and he also prescribed some allergy drops for regular use.

Next week I am finally getting the crown (after the root canal last month) on my tooth so that's fun!

I also have the upcoming medi-cal appointment. I figure I may as well go. It may help me in some fashion at a later date.

Been praying on and really thinking about the power of words.

Life or death.


Mylie is beautiful. Extremely. I noticed she no longer shows her teeth in photographs and when I asked her why she sadly told me "because I thought I look like a scary monster with my teeth." Oh heavens! A wave of enormous guilt swept over me. You see, ever since Mylie first started getting her precious baby teeth I would hold her gums up and say "monster face!" It was our little game and until recently she only thought of it as affectionate and funny. But now, at 4 years old, she is able to comprehend those words and what was a joke became truth to her little ears! I apologized straight away and asked if she would forgive me. I told her she is absolutely beautiful and that I would never, ever lie to her. That I will always tell her the truth and that I think she is absolutely wonderfully made. I implored her to smile with her teeth showing and she would not. Finally she cracked a slight toothy grin, but the sting of what I spoke out over her sticks with me.

I will never, ever do that again. See, I like sarcasm. I think jokes are funny, but I forgot truly the immense power of what we say. Even saying I have diseases. Or someone I know saying that their teeth are falling apart. Or all the bazillion ways we put ourselves down or become negative in our speech. Our words carry so much weight and power!

Proverbs 18:21

Death and life are in the power of the tongue, and those who love it will eat its fruits.


Proverbs 12:18

There is one whose rash words are like sword thrusts, but the tongue of the wise brings healing.


Matthew 15:18

But what comes out of the mouth proceeds from the heart, and this defiles a person.

Ephesians 4:29

Let no corrupting talk come out of your mouths, but only such as is good for building up, as fits the occasion, that it may give grace to those who hear.

Matthew 12:36

I tell you, on the day of judgment people will give account for every careless word they speak,

Proverbs 16:24

Gracious words are like a honeycomb, sweetness to the soul and health to the body.

Colossians 3:8

But now you must put them all away: anger, wrath, malice, slander, and obscene talk from your mouth.

Proverbs 13:3

Whoever guards his mouth preserves his life; he who opens wide his lips comes to ruin.

James 1:26

If anyone thinks he is religious and does not bridle his tongue but deceives his heart, this person's religion is worthless.


Proverbs 21:23

Whoever keeps his mouth and his tongue keeps himself out of trouble.

Proverbs 15:4

A gentle tongue is a tree of life, but perverseness in it breaks the spirit.

Proverbs 29:20

Do you see a man who is hasty in his words? There is more hope for a fool than for him.


James 3:1-12

Not many of you should become teachers, my brothers, for you know that we who teach will be judged with greater strictness. For we all stumble in many ways. And if anyone does not stumble in what he says, he is a perfect man, able also to bridle his whole body. If we put bits into the mouths of horses so that they obey us, we guide their whole bodies as well. Look at the ships also: though they are so large and are driven by strong winds, they are guided by a very small rudder wherever the will of the pilot directs. So also the tongue is a small member, yet it boasts of great things. How great a forest is set ablaze by such a small fire! ...

Proverbs 15:1

A soft answer turns away wrath, but a harsh word stirs up anger.

Proverbs 17:27

Whoever restrains his words has knowledge, and he who has a cool spirit is a man of understanding.


Proverbs 17:28

Even a fool who keeps silent is considered wise; when he closes his lips, he is deemed intelligent.


Proverbs 17:9

Whoever covers an offense seeks love, but he who repeats a matter separates close friends.




Proverbs 27:2

Let another praise you, and not your own mouth; a stranger, and not your own lips.


Proverbs 10:19

When words are many, transgression is not lacking, but whoever restrains his lips is prudent.


Luke 6:45

The good person out of the good treasure of his heart produces good, and the evil person out of his evil treasure produces evil, for out of the abundance of the heart his mouth speaks.

Proverbs 25:11

A word fitly spoken is like apples of gold in a setting of silver.

Proverbs 15:2

The tongue of the wise commends knowledge, but the mouths of fools pour out folly.



Proverbs 16:23-24

The heart of the wise makes his speech judicious and adds persuasiveness to his lips. Gracious words are like a honeycomb, sweetness to the soul and health to the body.

Proverbs 18:13

If one gives an answer before he hears, it is his folly and shame.


Proverbs 6:2

If you are snared in the words of your mouth, caught in the words of your mouth,


I don't ever want to speak into someone's life unkind or untruths. Oh Lord, please set a guard upon my lips and tongue and let me only speak what is pleasing to you. Please take away my delight at any wickedness- be it crudeness or sarcasm or even silly jokes like "monster face." Let me remember how much my words weigh and let me be uplifting and encouraging to those you set in my path. Please forgive me for being overly critical, negative, and shortsighted in recent days. Let me declare LIFE over people, places, and things in my sphere of influence. Thank you Abba!

I'm faring well after last week's triple hit sickness. Looking forward to seeing my favorite teens tomorrow and watching Super 8.

Also reading a delightful young adult book (is it just me or have adult novels really lost a lot of creativity???) called A Kiss in Time. It's a modern day Sleeping Beauty, and I love me some Sleeping Beauty!

Mylie continues to amaze me. She has started to bring her rolly backpack and purse everywhere just like I do. She loves to run under my hair while I am blow drying it, and she is the epitome of a girly girl. She will only wear dresses or her ballet outfits. That kid loves to dance and she moves just like a fairy. Natural talent!

On a side note I am realizing more and more how taking care of myself is a full time job. For instance, I take pills all day. I have to set my alarm to remind me when to take them because sometimes I do forget. I start at 8am and don't stop every few hours until I go to bed at night. I have to space the thyroid meds from the other meds, the saccromyces 2 hours away from the nystatin which I take 3 times a day, and a whole bunch of other instructions and whatnot. It's very detailed and my life has to be very focused on when and what time I eat in correlation to these medications. It's crazy!